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Miracle Mom Reacts to Social Distancing

We are staying home for Malaya.

Social distancing is nothing new for many of our Miracle Families, and now it’s more important than ever. Miracle Mom Amanda shares her thoughts in this blog post below. Please stay healthy and take good care of your loved ones. For those who are so inclined, we can still help kids at Penn State Children’s Hospital from the comfort of our homes. Our online auction preview launches Wednesday, March 18. The auction will go live Friday, March 20 at 9 a.m. – Saturday, March 28 at 9 p.m. Stay tuned and stay well!

Written by Miracle Mom Amanda, whose daughter has a serious and rare condition called Microcolon Megacystis Intestinal Hypoperistalsis Syndrome (MMIHS).

Thank you for supporting Children’s Miracle Network at Penn State Children’s Hospital and helping families like mine. And I’m grateful for this platform to share a little bit about our lives during this time. Just like for many of you, the threat of COVID-19 is terrifying. And unfortunately, it’s a familiar feeling. Please understand that the precautions we are being told to take we live out daily. The handwashing, hand sanitizer, social distancing, canceling parties, not going to school, and not playing with peers is a part of our daily lives for our children and for us as their parents. The fear, the worry, the stress we live in is daily and right now it’s escalated. In addition to things like diapers and wipes, we are worried if our child’s medical supplies will become scarce or run out. Many people are not worried about getting sick, but we are very worried about our child getting sick or carrying it ourselves when we go out. We strip our clothes in the doorway and change clothes before greeting our children. We wear gloves to get the mail. We Lysol/ sanitize wipe doorknobs down, light switches, faucets, anything frequently touched within our days. Most of this consumes our daily lives. We rely on accessibility for hospital emergency care. If the hospitals are over capacity, we are vulnerable to exposure and accessibility to what is life-providing emergency care for our children. Please understand our children have chronic illnesses. They are immunocompromised. Our children are medically complex and fragile. We have already self-quarantined. We have already stocked up. And we are still worried if it will be enough. While there is such a divide on the severity of this virus please do be respectful and thoughtful to those at risk and in need. We can all do our part to “flatten the curve.” Thank you!

Read Malaya’s full story: